I'm on mobile so I hope the formatting is ok. So earlier this year I received the diagnosis of an autoimmune disease, most likely lupus or MS but I'm being treated for lupus-it's not definite which one it is yet, plus a connective tissue disorder. Before I had this diagnosis, I was sick all the time. I've been hospitalized for infections a few times and had surgeries that took 2x as long as expected to heal. I'm 25 but my health is poor for someone my age, and only expected to worsen until I'm 30 when I might have more easily distinguished symptoms to make the call which disease it is.
My health has always been a problem so I've probably always had this disease, it just took a doctor testing the right thing to find out. But since I have been sick so often, I barely have any work experience. I've gone to college and I'm currently enrolled, but I only have worked very sparsely. I feel like it makes it impossible for me to get any job at my age, especially one that meets my needs which I'll describe next. I hope it's not hopeless for me.
I need a job that I can do on my own time that won't fire me for being sick. I'm trying to go to school to become either a computer science major, a web developer, or both (taking classes in both to see which I'm better at). Either way I'm thinking I need to be freelance because sometimes I'll have the energy to work on a ton of stuff, then suddenly the next day be sick/have no energy to work at all. I cannot predict when I will have energy or not, or be sick or not. I feel because of this unreliability I'm not an asset to any company, I would be fired a lot despite of what work I could accomplish when I'm feeling well.
In the meantime while I'm in college I'm just lost, I took out a bunch of loans just to live and it will bite me someday, but I don't really have a choice. I cannot move back home as my house is infested with black mold and is generally an awful place for even healthy people to be (and most likely part of what caused my disease). I need something I can do while in school though as relying on loans is obviously not a good long term plan.
I could do office work but I am not supposed to stand for more than an hour at a time or lift more than 20 pounds due to the connective tissue disorder. I've tried Rev and they pay horribly. I'm thinking about looking into tutoring English for Chinese students online, but other than that I don't know what choices I have. I'm ok at art but I don't know if I could make enough via commissions to live. I just feel like my illness is holding me back so much and is ruining my life, which makes me stressed, and stress makes the disease symptoms worse, so it's really a catch 22. Can anyone help me figure out what options I have?
Thank you so much for taking time to read this.
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